#RareDisease close-up: Pulmonary Arterial Hypertension

pulmonary hypertension association rare disease paper Pulmonary hypertension, or PH, is high blood pressure in the arteries of the lungs that can lead to heart failure. The Pulmonary Hypertension Association (PHA) provided this whitepaper on ‘Pulmonary Arterial Hypertension: Recommendations for Improving Patient Outcomes.'

Download the whitepaper here.

In the whitepaper, the PHA states that ‘Despite ongoing additions to the treatment armamentarium, there remain substantial delays in the diagnosis and optimal care of patients with PAH as well as significantly delayed referrals to PH specialty centers. This remains the biggest barrier to maximizing patient outcomes.' Early diagnosis and treatment is key, and ‘each stakeholder group — patient, physician, caregiver, allied health professional — can make important contributions toward maximizing patient outcomes.'

If you want to learn more about:

  • Risk factors
  • Diagnosis
  • Treatment
  • Clinical research
  • Maximizing patient outcomes

…then you need to download the whitepaper now!

The Pulmonary Hypertension Association will be attending the World Orphan Drug Congress USA this April. Register now to meet with them and other leading rare disease patient groups.