John W. Walsh, President & CEO of Alpha -1 Foundation, spoke at last year's World Orphan Drug Congress USA on the topic â€˜How participation in a Phase IV longitudinal study empowered me to to support research to cure Alpha-1 Antitrypsin Deficiency.'
Do you want to learn more about:
- Creating a patient community
- Partnering with the scientific and clinical community
- Taking responsibility for equitable distribution and access to orphan drugs
If so, you need to check out the video below: