Highlights of the event and interviews with key industry people at the conference will be aired in The Balancing Act's rare disease segment on August 1 and 8. Don't miss this special feature! Tune in to the Lifetime Channel at 7am next two Thursdays.
Many don't realize there is a daily television segment focused on rare diseases. It's shorter than we'd like it to be but it's a welcome addition to the media platforms we can use to connect studies to patients.
About the show:
Behind the Mystery: Rare and Genetic Diseases is a unique and compelling series brought to you by The Balancing ActÂ® on Lifetime Television, Monday through Friday at 7 a.m. (ET/PT).
The Balancing Act's Â® Behind the Mystery: Rare and Genetic Diseases is the only national television series dedicated to rare and genetic disease awareness. Their mission is to educate the public and provide hope and support to patients and families through collaborations in education with pharmaceutical companies, foundations and patient advocacy groups.
About the conference:
The World Orphan Drug Congress USA 2014 will be from 23-25 April 2013 at the Grand Hyatt in Washington DC. It brings the entire value chain of decision-makers and influencers in an orphan drug biotech or pharma, from the very senior-level CEO to the Managers and Engineers who understand and use the product or service. Industry is joined by other key stakeholders in the industry: academia, patient groups, governments, payers and investors. Topic research and speaker invitations are now in motion. If you have ideas and suggestions, contact us today.