World Orphan Drug Congress USA on TV next week

_DSC0078Highlights of the event and interviews with key industry people at the conference will be aired in The Balancing Act's rare disease segment on August 1 and 8. Don't miss this special feature! Tune in to the Lifetime Channel at 7am next two Thursdays.

Many don't realize there is a daily television segment focused on rare diseases. It's shorter than we'd like it to be but it's a welcome addition to the media platforms we can use to connect studies to patients.

About the show:

Behind the Mystery: Rare and Genetic Diseases is a unique and compelling series brought to you by The Balancing Act® on Lifetime Television, Monday through Friday at 7 a.m. (ET/PT).

The Balancing Act's ® Behind the Mystery: Rare and Genetic Diseases is the only national television series dedicated to rare and genetic disease awareness. Their mission is to educate the public and provide hope and support to patients and families through collaborations in education with pharmaceutical companies, foundations and patient advocacy groups.

www.thebalancingact.com/rare

 

About the conference:

The World Orphan Drug Congress USA 2014 will be from 23-25 April 2013 at the Grand Hyatt in Washington DC. It brings the entire value chain of decision-makers and influencers in an orphan drug biotech or pharma, from the very senior-level CEO to the Managers and Engineers who understand and use the product or service. Industry is joined by other key stakeholders in the industry: academia, patient groups, governments, payers and investors. Topic research and speaker invitations are now in motion. If you have ideas and suggestions, contact us today.

 

www.terrapinn.com/orphandrug

Comments 1

  1. Carri levy

    Pinky, the WODC really opened our eyes to a different perspective on RARE and Orphan diseases. This was a fabulous turnout of leaders in the field all open and willing to educate nationally as well as globally each other. I find that since this conference I am still able to play the matchmaker with patient community and pharma advocacy from these connections I’ve met. I would say if you are in clinical trials, looking for international distribution, just starting out in this space, or a lifer in the RARE and Orphan disease world, the WODC is an educational and networking experience you don’t dare miss out on. Hope to see you in April in DC!

Leave a Reply

Your email address will not be published. Required fields are marked *